Mar 29, 2016|
AN INTERVIEW WITH JEAN ROSENBAUM, EXECUTIVE DIRECTOR AND J. ANDERSON, DEVELOPMENT DIRECTOR WITH PNW HOSPICE FOUNDATION ABOUT THE WORK THEY DO GRANTING WISHES TO PEOPLE IN HOSPICE CARE AND ABOUT THEIR FUNDRAISING GALA.
AN INTERVIEW WITH KYLIE COLE, FOUNDER OF THE CAPES AND CROWNS FOUNDATION, A NON-PROFIT THAT PHOTOGRAPHS KIDS AND FAMILIES GOING THROUGH SERIOUS HEALTH ISSUES.
AN INTERVIEW WITH KARA GRIFFEY, WALK DIRECTOR WITH THE ALZHEIMER’S ASSOCIATION OF OREGON AND SW WASHINGTON, ABOUT THE WORK THEY AROUND ALZHEIMER’S DISEASE AND ABOUT THEIR WALKS COMING UP LATER IN THE SUMMER.
AN INTERVIEW WITH DR. ERIC BLAKE, MEDICAL DIRECTOR AT THE PORTLAND CLINIC OF HOLISTIC MEDICINE ABOUT THE BENEFITS AND RISKS OF VITAMIN D AND SUN EXPOSURE, AS WELL AS THE CAUSES AND EFFECTS OF INFLAMMATION.
AN INTERVIEW WITH PRESTON ROTH, OWNER OF HOME INSTEAD SENIOR CARE, ABOUT SPEAKING WITH THE SENIORS IN YOUR LIFE ABOUT LONG TERM CARE.
Automatically Generated Transcript (may not be 100% accurate)
This is McChrystal and Entercom radio Portland public affairs program Hungary blocks of this time on the show I'd like to introduce you to an organization doing some amazing work here in the surrounding area to limit the scope we're going to be talking with the Pacific northwest hospice foundation. I'd like to welcome gene Rosenbaum executive director and thanks Gary thanks thanks for having us here certainly so let's get started first by talking about hospice and let us know. Yeah good certainly. The hospice this philosophy is special concept of. They're designed to provide comfort and support to patients and their families. All of especially when there's no longer are cure possible under hospice to goal soon enable patients to continue and alerts and he increase life. So that the last days maybe spent with the dignity and equality. On and surrounded by people that they love. So some of hospice care how are inpatient facilities. But the majority of hospice care is done either through a nursing home or actually in your home so most hospice patients live in the home are on the around. And so dove more common excuse me are more commonly how suspicions live in their homes and does this hospice provides the services. And to just patients those services could include. And do include a multi disciplinary team of physicians nurses hospice aids. All I social workers the read me counselors. And volunteers they all work together to ensure an address the physical social emotional and spiritual needs of patients and also their family. So hospice is a coordination all of although services together. And the patients. Typically or do they will have a terminal prognosis. There are medically certified hospice. That they have less than six months to live. And so hospice and kick a hospice care involves taking care of that patient on but it also involves taking care of the family. Still that the families know how to cope with an end of life situation how to cope win. And hospice will help support those patients in their home. They have regular meetings with gambling they talk about the condition of the family how they want to move forward and it helps the peace since. I'll talk to their family so the patient doesn't have to explain all the medical things the hospice comes in and hospice counselors. In bereavement counselors command work with the family and the patients so that everyone is prepared and can how very smooth and of life. What a special time to be in somebody's life. It's definitely an honor pressure is amazing honor. Jean how did you get involved in the in the Pacific northwest hospice foundation in 2007. And I had an extremely rare cancer. Are only 44 recorded cases in history. And I had a very grueling surgery and recovery. And I decided at that time that I need to make some changes in my life. Want it failed to give back and I wanted to find enjoying each day. So at that time I offered my services as liaison to a local hospice company as liaison to the medical community. And I and they end up hiring me first as a PR consultant. And and that crew into tractor business development and then they ended up hiring me full time it's a marketing director. Sow the seeds of the foundation actually began there but we never really received our 501 C three. As so after I left I incorporated the Pacific northwest hospice foundation to be a community charity. And we received their final one C three nonprofit status within a month so I've been funding patients since December of 2010. Well. That's a good long time now and growing and it's going very well that's exciting so tell me and me exactly what does the Pacific northwest hospice foundation do. Well we're nonprofit foundation only work with hospices around the Pacific northwest to grant final wishes to hospice patients in need to. Were they're we have a committed and engaged board of nine directors from the hospice and business communities. And we have a staff of four part time employees. We're the only foundation in the region that actually grants wishes solely to hospice patients. So in other words we don't fun buildings are programs. The medical portion of hospice is covered by Medicare. Medicaid or insurance. But for those patients in need where we're the ones that are there for matters of the heart. We called our grants gifted wishes that the funds are provided by donations from individuals and and businesses. And anyone can actually choose a specific type of wish that they that they would like to grant them on our website. For instance you might clicked. Hundred dollars which will buy. A romantic dinner for a couple that's their last chance to signify. Well. Cuts but again it's such a special kind of to be entering into someone's life. It is really so we're gifted gifted wished to be an example of a gifted wish. Well there last wishes her request before the patient's journey ends and some are basic needs and some are related. Bucket list items like trips so for example. Jim only had a few days left to live and he wanted to marry but it was so poor he couldn't even afford to marriage license. We get to the wish of marriage to GM and he passed away the next day on. Elizabeth was gifted the wish of flying to Portland spend the last. Hours of her seven year old grandson life at his bedside. Then there are some more joyous ones like Paul's gifted wished he wanted to go on one last fishing trip. So we sent him in this companion with his slurs in his lunch and and that was his last trip views over a hundred years. Suh isn't bed bound and non verbal patient but she understands everything. Her husband's been caring firfer five years and they're gifted wish was just a small gift cards for presents and food. For his wife for their 59 wedding anniversary. Typing all of these they're so there's so touching it's really hard for me to talk about him without. Being cheer me. Yeah for sure there it's such sweet and wonderful things I know a gifted wish it. These hospice patients don't pay for the news. Right now. What is your patience means that. As I say anorexic and said that a 100% of hospice is covered by Medicare or insurance. But if you're pork and you can't afford to fly in your relative to say get fired and can't afford to mattress Topper because you're in pain are you. Where you can't afford to have a massage to help your anxiety your pain or just whatever. You know actually when we started this. And it really even know what kinds of requests the come in. So people would say what are your parameters and I say I don't really know what the parameters of her policy we'll see what happens so. Over five and a half years so if funded like 500 wishes. I only turner turned down and wish so far. What kind of other things have. What what what's been one of the most interesting things that's coming. Room. C well we had so many to choose from we have this drew we had a serious trailblazers. Fan and issues and 98 years old and then. That she wanted to go to the trail blazers games so we've. After app with wheelchair transportation tickets to the game men and she got to meet some of the trail blazers. So that was. That was kind of that's very special specially in 98 your Google Yahoo! could come up huh. Then there's baby super sad ones of patients that request medical transportation. To. Like a daughter's wedding and this one particular woman. Passed away like the next day. We just feel so honored you know that we were part of that and that we can make an impact like that and just final hours of somebody's life. Now. It's really wonderful so the open obviously these wishes don't come free to you how how old you gripped his wishes and where does that funding come from. Well. Yeah. Sure. So. Get to wishes they'd typically will come through to us the most common way is through the hospice counselors. So we have hospice says hospices that our partners. And we will talk to. Odd give a presentation to and explain to the cop and an ideal situation explains that the counselors. What we do and how we drank it did wishes give them examples of gifted wishes but it means we want them to focus on the patient. And what's going to make him happy at the end of the life. And the counselors will come to us with some very likely Jean saint some very practical items and build they know that patients very well they interact with them. Are sometimes daily at least weekly spot in me talking and they know with the patients need so that patients will say well. I know on the Pacific northwest hospice foundation and hospice foundation grants gifted wishes so they Amy Grant you gifted wished so that. You wore grandson can fly and hands CUR before you pass away. So big counselors are are our biggest entry or. The one that's the people that are going to meet the connection forests between he used to get tuitions are available and you're person in need. So that's the most common but we have other ways that people visit our website all they'll hear about our. Honor the journey gala and I'll Pique their interest. About the hospice foundation. A so where do mean. As much marking as we think we need to you but we concentrate on geeky partnerships with hospices and getting in front of the counselors so that we can't. Our grand true gifted wishes to these hospice patients who could. What is your looks like. Our website it is. Www. Heat and debut hospice dot org the content question. Yes I think actually answer the answer to that question was for the it was where Puerto funds come from even. So. The mostly the funds come from besides individual donors aren't. Annual gala which is our biggest fundraisers of the year and this year will be on May seventh. And that's held at the organ golf club which is just absolutely gorgeous yeah yeah. People love it it's a really. It's a serious topic but it's not a serious event I mean we do have our moments ago talking about or stories but. It's a very kind of joyous it stands we have usually about 300 attending. We have. Old sit down dinner with wine we have silent and live auctions and this year we've added. A local artists auctions. They also have. Golden. Ticket raffle for a chance to win a trip for two and Italy. Things and actually don't have to attend the event he liked it fire raffle tickets in just get it online. Aimed. Our website. And so for a hundred dollars have a chance at winning trip to Italy that's how I totally agree going to be people like to do that the that's great to. That the events that we have a short program where we're present that Edward. And this year's recipient is doctor Jocelyn light she's hospice and palliative care physician. For legacy hospice and hope while house. Which is actually the only inpatient facility in Portland took hospice patients. Or we first granted in 2012. To governor Barbara Roberts hand. She's been prepared staunch supporter of her work and our gala ever since that time. This year we have rabbi Michael Kahane from congregation Beth Israel. Will be the special guest speaker. He's the gala black tie and kind of formal thing means business casual business business casual okay that's not super formal though some people. Like an opportunity get your stuff for sure. Its list of some people do can turn into a very special night out. It's definitely great way to help out Pacific northwest hospice foundation yes is this your largest fundraiser of the year. It is definitely dissidents. Tony hostels are there in the region near the open up. Yeah in the year according to hospice until the care association there our Sony hospices and organ right now. And there about 25 in the metro I'll Portland metro region. All but these numbers are growing. As the population grows older more hospices start and we've already seen incredible growth the last two years of the hospice industry. It's ants. We in new goods weren't you point out that the gene mentions that were the only hospice. Were the only foundation in the region that that covers hospice in grants gifted wishes his people there. No other foundations that do this work. Well there's and there's a big need for our foundation. Peace and have a large need for things that are not covered bar under our traditional hospice care. And they can be loud Tenser copper related late teens say it's like a new bad or more comfortable chair or lazy boy chair that they wanted to stay and or he's used tools that can openers and cleaning materials and things that are. Not covered under hospice care and so are gifted wishes can help that in and help ease their life that's that there and the like experience. A lot and we also supports what hospice supports family members. With council lean in managing expectations but they don't ever pop try out for travel cost to bring family members and or those extra special things and so. Will pay for bus fare airfare on if that's the wish that the patient passed. So that's the Pacific northwest hospice foundation that's where comment we come in and help. I'll augment and to give out special things rather than just one achieved neat which is covered under the great hospice care. All but it's. Growing fast there's a lot of the population's growing older there's a lot of new hospices springing up and those hospices and those patients. Need a little extra support. She was at all surprising to you how practical some of the gifted wishes. Everything it was we had request or electric razor. Or a radio. End. Even request is sleeping bag excellent put over the top of this. Bed in the nursing home because it was just warmer and more comfortable do. So they're they tend to be categories of things seems like that. There's just no one's every day we actually had. The one the one patients request that I turned down all this time was somebody that wanted to buy goat for Africa. Somehow I just felt like. That wasn't anything that was gonna indeed that comforting to the patient that was just it just didn't seem personally I. I don't know what's the interest and the connection Muslim a little too tenuous. Or four foundation. While much like G insane and that's the only one reason or 99.9. Percent of the wishes that come through our office because. We were we're not here to judge what's gonna help somebody else arts and there and their final days. How many patients will be helped through years. Think it product being close to 500. That's a significant. So but we're hoping to probably more than double in the next year as we've really had spent last year getting our infrastructure together. And last June we didn't have any employees. That we had our board of directors and now now we have worked part time employees. Really we're really. Sat. Two take off this year. Pace in recent information before this interview saying the 2015 was kind of a big year freely and hit some big growth in 2015. That's very exciting very very exciting times then they have a great I was going to elaborate a little bit more about. Were working with twenty hospice is currently in like I said there are. Are seven games or again 25 in the metro region so we are going to continue to expand and try to meet those needs. Our foundation is very scalable were ready to go and ready to. Partner with more hospices and get in front of more hospice organizations. As soon as we can and I'll raise the money and keep a balance our funding so we are. Working to make sure that we can fund all the get to wishes we receive. So we have to have the fundraising in the money donated to us and ready to go before we start expanding now so we take that scalable. As we get more more donations and we are raising more money. Then we can reach more hospices and more hospice patients but we've been doing a very good job keeping a balance now. Not expanding too fast to where we have to turn down wishes because we don't have the money to me to fund. You know limiting Kenneth to keep that in check. Yes yes we have to definitely keep that in check but. Who are hoping is and our plans our schools and our strategy is to double that care this year so working we wanna work with close to forty hospices by the end of twenty. Sixteen and hopefully. How of 20300. Get to push is just this year so we have. A very. Very good goals in place to help as many people speak with wonderful little first such a wonderful thing you must be. Really difficult to think of even having the potential to turn someone down right deal when he's out and that would be even more heartbreaking. Rights rights we wanna be able win a counselor pics of phone calls gene or someone fills dollar on line form. On the web sites for gifted wished we wanna be able to fund that and we wanna be found it very fast. Took her listeners help out. Yes great thank you for asking. Most importantly I think everyone. How they can help out is one knowing hospice care is available that if is that it has positive facts for everyone involved. And once you know and have accepted that the end of life is near you talk to your doctor our hospice can open up a wide range of services for you. So making sure that you know that that the doctors can help. Can help of the patient and the family members there is our counselors and psychologists help our mentally prepare you in the peace and for the end. And volunteers and professionals that help out the family to deal with their loss of hospice is there and that's what it's who we definitely want to make sure that everyone. It's part of art charter or mission to make sure people understand our hospice and the kid and and use off hospice. When it's needed to. Off but and so knowing is half the battle. But Ross in the foundation. We definitely are thrive on donations. One you can support foundation and have fun at the same time by coming to an honor to gala journey. Which is on May seventh dancing and dinner lots of fun and you can support a great cause. And of course there's individual contributions you've come to our web sites and make contribution to the gifted wishes program. I Jean's seen a hundred dollars and sporting media now let's go to the theater that someone's gifted wished. 500 dollars can provide medical transportation to their daughter's wedding they can get the ambulance and they can come to the wedding. Where they might not being able to they may have not been able to afford that without the gifted wish. So that's the average person can help in many different place. And I would imagine you're also looking for maybe some company contributions but like you we talked about blazer tickets a little oil absolutely is the end and donate more tickets and things like that. Definitely in kind contributions. And also opportunities for businesses to. Sponsor our gala because we've we've provide quite a bit of publicity for them no we are looking to partner with businesses would put their logo. On our website with a link to their business and they. Their names and program. We've. Talked about the epic scale but yeah thank halo we have. There's lots of vote book there's lots. Little loves me the end Milan are there really isn't exactly a lot of a lot of love and we have. We have great sponsors now we have killed mortgage company that sponsors us and seems your wealth management. As well last Stephen cirrus owner and that march are fantastic supporters of us and hospice care of the northwest. All of those are some of our our corporate sponsors that come in and they sponsor of the gala day. Our partner with us and they get tickets to gala me. I'll have a great time under dale ninety Jeanne Hussein they we promote down as much as we can. In the end I guess more importantly is that the people that attend the gala in the people know about which is over 300 people. That attend the gala in the fuel and no laws they support our sponsors. There are people from you know people from the deal that will their like. All right and need to knew about it I mean go to bed part because that is. They're sponsored Pacific's request hospice foundation. So there are many ways for our for companies sponsor us oh he mentions. In kind items even in kind items so. You. You me so massages and so you can donate in kind size in the we can auction that off at the gala there's a lot and silent auction in that hole. Let's raise money so it can directly on go to give you get to restore hospice patients excrete. In the last couple minutes we have here doing a share some more gifted missions like these these are so wonderful. Her Alec left to. Let's see. Peter was a young father who could not afford Christmas gifts for his wife and baby daughters and also knew that he would not likely live to see the holiday and so his gift to wish was for some close to half wrapped. And left behind for his family. To cram alcohol. And Sarah is a 75 year old patient who wants to visit her twin sister one last time. Her gifted wish was money for gas and travel expenses for her son to driver to Montana and say good bye to her twin. And we had a request from forget to wish from the very frail. 68 pound patient who was always cold. Now she requested was so warm examiners and a rope for her birthday. Suzanne as it did wish was for a latch hook rug kits. So that she could make a road to leave behind her daughter after she passed away. Diana could no longer write but wanted to leave messages behind for her partner. And her gifted wish was a recorder. Such wonderful things sits. How heart warming. Really fantastic stuff definitely definitely touches the heart. It's give up a website or more times where people get more information. Www. Lots of information there in a way to make donations to right correct me go on this site and check out what we do see examples. Odd read stories about hospice patients addicted wishes and by gala tickets are making donations and foundation awesome the due date bulletin. This may seventh may seventh it's going to be good times it's going to be fun great. We were talking today with the Pacific northwest hospice foundation Jeanne Rosenbaum executive director and thank you you very. Microscope is an inner calm real Portland public affairs program I'm Gary blocks and if you have a nonprofit or public affairs organization that you'd like to let others know about. You can email me my email address is microscopes that inter com dot com remember Entercom sturgeon and eat. And you can always go to this station's website click on the community link and submit your information there. If you'd like to hear this program again you can visit our website at microscope PDX dot com thanks for listening about the scope and enjoy the rest of your weekend.