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UCP Oregon 081218

Aug 10, 2018|

AN INTERVIEW WITH SUSAN CUSHMAN AND GAVIN JOHNSON WITH UCP OREGON ABOUT THE WORK THEY DO ASSISTING PEOPLE WITH CEREBRAL PALSY AND OTHER DEVELOPMENTAL AND INTELLECTUAL DISABILITIES, AND ABOUT THEIR FUNDRAISING WALK.

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Automatically Generated Transcript (may not be 100% accurate)

This is microscope and Entercom radio Portland public affairs program. I'm during blocks. What do you see UC peel Oregon. On the website it says they support people who experienced developmental disabilities believe in the power of real choice real jobs. Real homes and real connections let's talk about this time on microscope. Under the scope this time though like to welcome Susan Cushman family support director and Gavin Johnson development director we UCP Oregon hey guys on this show our thanks for having us. So Susan and conservative view and talk about what is cerebral palsy that we UCP stand. For rape in the united cerebral policy okay and we're one of the affiliates of national organization CP cerebral palsy. Is a basically a brain injury and there are many causes and sometimes you don't know what caused it but it affects muscle coordination. Primarily and doesn't happen at any point in life knowing it happens when the brains developing and most commonly happens. Before birth. Or during labor. Or within the first couple years of the child's life and while they're bringing this is really developing I know several children who drowned when you were two or three. Who hadn't had CP and then they acquire it. From. The lack of oxygen to their Bernie well. Or as several children who were in car accidents when they were babies and I had hip injury if we had a hand injury we college traumatic brain injury. When your brains developing the concert. Circuit to catch offerings. Is that. Something that's. Who do we know but the causes during the U well my daughter was born not breathing so they know if you don't have an epoxy to the brain part of the brain. Gets injured and it affects movement said depending on which part of the brain gets acted and and damaged. How much which part of the bodies of active sometimes kids have strokes in new hero which was fascinating I'll meet you learned. It's called Kenny pleased unisex one part one side of the body so need to left side's weaker than the right usually Henne preaching kids can walk and talk. It just. Down on him. To me about your daughter so my daughter is now 26. My guess itches for not reading and when she was four months old I got the diagnosis I didn't know she's my first thing she moved manager believe but they didn't really. I didn't wanna think she had through the policy they mentioned at the day after her purse and I said go away. So. Luckily the Doctor Who diagnosed her was on the CP board and gave me a card for family support so the next day when I sat crying I called her. And she was the mother of twins who both had CP lot of twins won his seat he went there. And she reassured me and penny gave me hope that I would survive thanks. I it was just I didn't know anything about through a policy I didn't I hadn't been around anybody I didn't grow up with kids in this with disabilities when I went to school. Little old isn't some than the ID EA. So it was scary and terrifying and so I can call you seeking any time and yet the resources and the help I need it. That's hook that but first initial meeting with UCP what was that like. Well it was it was it was on the phone and it was. Wonderful it was it was just what I needed I didn't he was a mom who actually had a child was through two children was true opposing. And so she knew what I was going through and she could. She was there for me in a way that I really needed. And that's what I get to do now with new parents who call me I never forget what it was like to get that diagnosis so I just heard from a new mom and Milton free water. Yesterday whose little baby was just diagnosed and she doesn't know where to turn so she turned UCP thank goodness in nineteen connector with other parents and and giver resources. How many children are or born that he's won in 2000 and apparently right now. And how many people are Uga or does he sepia and orient work with. Well family's support doesn't charge for services we support about 800 families throughout Oregon and Washington. On UCP or again for adult services we serve in the Portland metro area. Adults with all kinds of disabilities with employment services. With community connections. With the supported living services. That's great yet. When did you into the do you see peace are working with people of all types of development of developmental disability. She I think they've pretty much have almost since the beginning vocal can you see the organ started in 1955. And we started was sheltered workshops and group homes because that was better than the institutions. And no jobs. And then in the eighties we transitioned into supported letting her support in individual in their own apartment or home. And they have the staffing needs some people need between percent of staff and some people need to check in once a week. So of our adult customers mostly not answering most haven't. Pulling even with. You seeking a little over twelve years now you know as the Phillies aperture that's awesome what does it looks like tube to be in a position to know how much. You mean to some of these families. It's awesome and it doesn't feel like a job most of the time. I'm always trying to figure out better ways to support families and know for me. Being with other appearance was the most important support so. I think when my main jobs is connecting parents with each other. Whether they live in independence or in Medford or in port. That first initial and blow when you have a child. With CB if that must be one of the scary things ever. It was it was it was the scariest day of my life it was what I considered the most tragic day of my life as well her birth was pretty darn germanic. As she was taken out of the room not breathing and revived right away but. But getting the diagnosis was overwhelming and so I actually have put together a part point about the grief process for parents and now. You know it's important to grieve that disability so you can be there with your child I had to do that I kept expecting Reid to be doing more than she was doing and that was unfair to her. So when she was almost too I did discrete ritual to let go of the kid I thought I was gonna have it's like it be their for the child and I have no right to share them with professionals who work with him throughout the state. That's super interesting. Outlet pipe that's a process it is a process absolutely process. Tell me about Maria and what's his legacy what her life like well Marie has what's called at the toy through a positive is different types. So she started. Sitting up when she was eighteen months and walking in she had that kind decision could set up if colonel walker. So she can lock she uses her power chair for long distances like going to the zoo. She's had a job doing data entry because it put in front of the computer when she was eleven months old. And for speech there because they knew she'd always need a computer. So she's really computer savvy and really math Smart now what I've heard is 35% of people through policy here left handed but she's right handed so. She hasn't and those kids looser policy aren't good enough that she's really Africa so anyway she's really good at art and so she has had an NC site for the last eight years. Cells are artists where she can't they do most most successfully disability conference of course. He's got that from you I know you're nervous yes well living doing art her whole life that's great. What are some misconceptions about CP well it's not a disease. It's a condition it's not progressive. It's not contagious. I would talk to Maria school classmates in school elementary school to remind them that it was contagious they can be different. Yes progressive. So it did. Doesn't progressed beyond who wants than when I go and therapies can help mitigate. The AM in movements. In your life. And even though they may speak a little differently and move a little differently at the mind is working. Pretty rattled the. Normally most kids and adults with CP have average to high intelligence. So I know my misconception because I didn't know anybody with a disability before Marie was that anybody in a wheelchair had an intellectual disability and that's just not true. So I think that that many people. With great abilities whether they can move their bodies are not their minds are very happy. To be targeting beyond that stereotype now typical the I had people commentary and talk baby talk to her. She's 26 now and she can do. Complicated algebraic formula so I think cash who went on. Lacquered and show it to people when baby talk to us that they and what is her reaction to people that she doesn't really pay attention she doesn't really care wouldn't you think. Which is a blessing in she doesn't really she's never noticed people staring at her I do but she doesn't. She's very happy with who she is she was Jesse dilemma if she could wake up tomorrow without seat he would change she said no. Really likes who she is NC he's she's written. So she's a candidate for you know that our kids can be a great teacher of for the community but I think generally most people don't have that connection. And no Palestinian people this is it just like just like me and you just move a little different. We have different sport needs. The new once again introduce Kevin Johnson DeVon is the development director with UC Bjork and Kevin Tony book what do you do what does that development director. So we we raise funds and awareness so wound we we develop opportunities to us. Team to create funds for the organization so that mostly those funds will go to help our family support department. But also help us other ancillary opportunities with our other service areas to. So I'm we do dads in a man and number of different ways media have or. Outward facing event that we'll talk about a little bit down the whopper on run but we also give opportunities for people to get in the way that that's for themselves. Either it might be reading its second major gift or corporation being a corporate sponsor. And providing an in kind donation of some sorts. People can. Can choose some plain getting option for later in life when when their funds can go. They've accumulated to go to something helpful reaches them as a great opportunity as well. So him mostly. People than making individual donations is the greatest opportunity we have. So yes. Our most or all of you CP services free. So. In this town sports services are down so the others service areas have a fee for service that they actually pay. VM Medicaid usually poker and so that's how that works. And it's it's a great obtain so there's some things that we can't pay for a so they reimbursements from. Medicaid I beg grade is just I think anybody in the health care industry with a. So there are how we do amazing job leveraging and maximizing those payments to give incredible service to that to the people Weezer. That's awesome. So let's talk about the big event which is coming up. Middle of September's aren't it is the middle may limit on the eyes of September on September 15. So it's a Saturday and it says it's a magical event saying Portman is known for a lot of its walks and runs during the end the summer time. That I have to say this though the many and I've been to this line. It really shares than the love of everyone there's they're all embracing something that's important to them whether it's that running Eric. Or walking or being outside bet for her clearly for a lot of people it is asking. Basically a family reunion of the folks that come out. Might be walking in honor of that somebody has. You know actually demand mental disability but. It brings their family together their family members people that they were equipped and. And some days don't get matching shirts and it's a really column for process. That parade of you welcome people walking over the Telecom bridge and that high fighting each others are coming back and just knowing that everyone is coming together. In supporting something that's important to them and it really feels good to know that there are others they care. Then to get together every year then in mid September and millions like you say it's just like a family reunion the walk rule rump absolutely. So what's throughout this year so the route to we start on the east side. And just just living north of on C and we. We lock out around on CNN across the Telecom bridge and then back again there the five K does that same route that done now come back for the Telecom and run up to us. This spring. And we wanted to corridor and again then that and then come back and so makes it a five K for everybody. They start first to say they often everyone finish is about the same time and then they re trying to two are stressful area where. We have around multiple Tencent up with different vendors. And sponsors that have set up booths and they're giving things away and great food from different people like. Papa Murphy's handing out pizza and mingling as riches that catering company that sort of that shares some amazing food. As well as a lot of different people I think we have that. What about ten five different people and getting my food habits is really sweet. And nothing bunt cake says Elaine those sound like guys are arrested and great people and they've had. So many good folks of that traffic is gonna evolve to hammer out ink helps us out and called kiss is a course provides water for a sell a lot of folks giving some in kind. Donations to make and great event experience for folks. How can our listeners get involved with the walker owner of and good I'm glad that sound. It's really easy news you go to WW Demi and. Died ECP Loring and authority and you'll find on the while crawling around link which will take you to an amazing web site. That that we've created and makes it very easy for you to sign up as an individual or. So to created team or join a team or donate to one or the other an individual or area team. And click in the military right now Slaton catch up with a two is is that it's too late and operate it is not you can sign up to within. About 48 hours before the event. And you course you can come down the date of the event in the morning. The Santa tanned so yes he would be a little bit earlier you wanna register for the event I think we had about eighty people. Register the day of the event you know those folks that just. This could make up their mind until the and I know I mean there waiting for is to see if it's raining or not but. Which we've had Dan really great weather for many of the events and it's a great opportunity to get together. Exercise. And share the love. Mid September is that September the pretty good month your degree in its first summer as early July August September and yeah. There's some boiling hot and it's saying he's doing here. Using nice music doesn't rain but you know we can never say that here in Oregon and it never rains in September and as Fisher. Because as one of your largest fundraising events of the year and say yeah I think it is it is one ever at a largest outward facing events which really involves the community and Leah. It's a great when this opportunity because people that you get involved and we. So motivational I emails out folks they raise funds but also include a message about what we do and how we serve and and so it's an opportunity throughout the end the grass is gonna sign a tax these and it goes it goes to the event to see. The services that we provide them and some profiles about the people that would help. That bit is sometimes eye opening for people who may really never review before that could use your services absolutely. Yeah I think they're people that we have to find out all the time there are a lot of people out there that. Maybe have the means. That have an election there with child or family member has an intellectual developmental disability they have the means is. Did I reach out to community organizations how. And only to realize that. Said there are many different ways anyhow I think they think he let them with Susan was talking mad is. I hear over and over again opportunity to talk to another family. It has a family member and similar situation it's. It's in incredibly powerful Marceau than probably other services that provided through a lot of organizations is that one on one support is going to be. Somebody who's walking your shoes. Absolutely it's gotta be you agree. Asset yeah and Iowa what is what is the meaning behind this isn't that wise it's a meaningful for people. Well and I ain't got Murray's steak no sister I didn't even know it's true policy was. So you meet another appearance to talk to a parent who knew it wasn't was her child is twelve so she'd been dealing with it for a long time. And could you know explain what it meant and how we couldn't really know what Marie would be able to do when she got older but. To know that there were resource is people like to ask questions of whenever I had questions. Where to go for it's accounting caseworker and that's. See you work with and we support with UCP but there are other services they UCP provides tells about those two well well now the my daughter's an adult. First her on people that are over eighteen. We provide she had employment services to find her job help her find a job with the job coach just supported her. I'm so we want we help people find real jobs not sheltered workshop jobs. And then are supported living as I mentioned we support people in their homes with his marchers and staff as they need. And we have a thing copies to be connections as are brokerage and they help. Adults. With a personal agent who. Helps them achieve whatever their goals are whether it be employment or volunteering or learning how to ride the bus. The services for adults to differ quite a difference for services from kids for kids right I mean obviously kids need different things and little sleep break. Actually have that we do have a service called building blocks which is our newest service that provides in home supports for families with kids under eighteen. So that it when the parents get some respite time. They they can hire staff through building blocks to coming to their home and give them a break. Because on there's this analogy which I came up with a few years ago it if your parent and you had a child with the flu. And you know how scary that was in your child had this high fever and he thought you know we couldn't sleep through the night for several days. That's what a lot of our families go through every single day. Have children who can't even cost you don't have enough muscle control the costs of the have to be section throughout the day and they had seizures and they never sleeps at night. So I do everything we can to support the families gives them a break we have a program congress Italian we're we give people free hotel room. So there's several wonderful hotels in Portland. Like the double tree and that on the area not on Broadway. They give us free hotel rooms here and there to give to parents to get a break because they finally get to sleep the night for one night. That must be a special treat it is special treat yes to a more about that would go. Well where their kids go. Well the kids they have to provide their own child care. And we have some funds to help pay for that most people. Have relatives. Grandparents or aunts or uncle is her siblings who can watched their children. And it's kind of like date night the moment is pretty nice and for parents who can't get away overnight we did start date nights and weekends gift certificates from. Restaurants all over Portland all over the state. Once we finally have a feeling kind of falls we write to restaurants and kind of fall as we get gift certificate so that they can have a date night. And or your brother you are always looking for those two are always looking for that if you're restaurant on gift certificate we would love to have you contacted us. And protesting excuses tickets for theater which is just luckily a look so great zip line and then gives us tickets a couple of times a year and families and then. Parents can get away I'm sure that Israel get away as applying to be thinking about it. If they are out of terabyte your head at but the how to about a power parents chosen due to get them to rest totality Pakistan and a that's true what a great thing that is. That parents really love they love that trio and ask you about one of those services that you see people provides at say employment solutions to me about. So I am planners solutions is I am yes one of the services that you see you are improvising and something that dead really resonate they all the services resonates with me but I had the opportunity for started over a year ago. To land to Jews and field trips as and learning about the organization and and I know is really touched by how. Cut the deficit and folks go. The team goes to find a job for persons with disabilities Frist other person. Indicates though what he or she wants to do that they had that they do want to work. And then native discovery process which is quite amazing so they don't go to an employer's hey when you hire this person and disabilities. They go to the person who identifies the David like to work and they'll gather. And family members guardians who mavericks in a rhythm and they'll talk about what this person would like to to do end and now. Sometimes it's very difficult for the person to communicate so that needs that sometimes those supports are are needed and collectively. They'll come up with and things that will indicate what they wanted to you bill that's what color they like what do went what kind of things do they do around the hum our databases. And they'll put something together and then they'll go out and actually look for a job that matches what that person wants to do. So this is that it should make chicken or egg kind of thing so. Then they have that that really difficult process that have fining have to change. I'm going to accompany that kind of matches what they think might happen. Down maybe ask for a tour and and they'll identify things. Jobs. Maybe the company -- you know that they that they needed. And that person to support maybe they find some staff spend RA races. Go and do this and a job it takes away from their core duties and it happens to match perfect with this other person those. There's other duties so. Bill mill creek that op chain but it's based on the these importance of the person that wants to work. And it's an amazing name happens to some and they feel fit filled. They go from being taxed native to tax positive and some desert tax benefits for our company to and to hire prisoner disabilities depending on what is so. It's a group is amazing effort starting with a personal wants to work. And I don't and the unemployment rate firfer disabilities and people into space is green is pretty high and honor the memory of coming head. But I'm playing I know for like aren't going to college I think is only 16% to get a college degree. So is great for the community grieve for the person and I love that process so these are them many services that. Are provided ends and serves through the fund raising our efforts of violence and things like the block Roland run. Well let's talk more about the accumulation of everything you need to know about walk Roland unless and we answered well we have a Al lot of folks that help out whether the him particularly then there's then the corporate sponsors that has that decides to support us. I want which of course is asked. Is intercom made four point 7010 (%expletive) wanna find one the buzz they're on board is helping us jails. If you don't. Minimum you'll be hearing have PSAs Seattle and nearly OC Gustave joining us he's sinners not only has that honor spokesperson and but they also add the events users as AMC's been involved for years as everyone knows he's been in the community. I think he does say the longest. Is serving DJ in making any other thought is that correct is a good guy yeah for sure and so we have. Also enclave. We have bills beginning fact we have JD full lap earlier. The company insurance and a financial. Country's financial and the course be able org enables savings plans Pacific automation performance ability. We have and German Bates and Kaiser Permanente in. And bliss horses insurance or his advisors Alan electric GUS banks that terrible services group beneficial bank is stevens' place. And I mentioned Daryn transporters before bedtime. Are these folks are coming together providing great event experience and and provide very needed funds for people we serve. Now it's great to have so many people step up absolutely the date for the U opera one run in September 15 and tell me the winter warmer pencil people can get signed up and get participating UCP. Or again and died worry and we've got a lot of that we had a huge growth lasted 2524000. Dollars more than the year before and a 160 more people than the year before and so we're. Pretty excited to have a lot and I need things to even run since last year so it's an exciting. Getting bigger every year absolutely it's a simple thanks wolf if we want to experience. Metros go fees and Entercom radio Portland public affairs program. I'm Gary blocks and if you're involved with a non profit for public affairs organization Ford do you have an idea for an upcoming show I'd like to hear from you. This is microscope PDX dot com and submit your ideas you can also go to the station's website and some richer information there. Thanks for listening to metros go and enjoy the rest of your weekend.