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Leukemia & Lymphoma Society 093018

Sep 27, 2018|

AN INTERVIEW WITH ANNA WILLIAMS WITH THE LEUKEMIA & LYMPHOMA SOCIETY ABOUT THE WORK THEY DO RAISING MONEY FOR AND FUNDING CANCER RESEARCH AND ABOUT THEY BENEFIT WALK “LIGHT THE NIGHT”.

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Automatically Generated Transcript (may not be 100% accurate)

This is a microscope and Entercom radio Portland public affairs program. I'm during blocks speaking today with and it Williams and it is with the leukemia and lymphoma society hitter and I am Oreo. I'm doing well in June and can't thank you so much for having having me. So let's concerted maybe maybe explaining to our audience who the leukemia and lymphoma society is. Absolutely though leukemia lymphoma society are also known as el Al asks is the largest nonprofit dedicated to finding a cure for black cancer. We invest more in research than any other organization. And cancer research we also do things like patient support services and advocacy. And so again where we're the largest nonprofit that's looking to find a cure for cancer. Blood cancers can explain to me what blood cancers are. Blood cancers are leukemia lymphoma non hodgkin's. This whole variety of cancers that I am is attacking the blood cells in the blood. And one of the most fascinating things about our classes that yes we focus on on blood and finding a cure for blood cancers. But the work that we're doing on blood and on. Blood cancers is actually transferable to so many different kinds of cancers. And other diseases as well. And so we do research on the blunt and the blood is the one thing that when you pull it out of the body it doesn't change composition. So were able to come up with different therapies and treatments that are then able to cheat other cancers tumors. And other sorts of cancers and even things like diabetes and other diseases it's very fascinating wow I now or eight. That is super fascinating. How did you get into the skip work so I actually worked very different nonprofit that was and working primarily with kids. And I saw a lot of kids that are battling blood cancers. And unfortunately a lot of kids that lost their lives of blood cancers. And there's nothing okay about kids' stuff. That upsets the whole turn of the world that's not supposed to happen and when I first started working through that nonprofit. Prognosis for a child diagnosed with leukemia was. Really Creighton and I have watched in my eight in my tenure at and dance since the treatments really improve. I'm in so much of that is because of the work of Palo last. And to give you a little bit of perspective in the last eighteen months alone there have been 25 new cancer treatments that have been approved by the FDA. Hello less suspended twenty of them while. That's also is really awesome and something we're very proud of and because those treatments are real life. Change in the game and improving the quality of life for patients and people whose whole world is turned upside down win. When they get the diagnosis. And so that's sort of Gilani answer to how I got here I worked with a lot of patience and it was really. Her breaking and gut wrenching to watch and be diagnosed and then. Battle in so many of them lose. And I was doing very patient oriented. Programmatic work. And it's hard it's really hard and so much love and respect for the people back to that. I'm so Cummings LO last and being on the really hopeful the research side of things were able to. Makes some really amazing groundbreaking advancements in the world of cancer research and treatment. And and also provide the patient support services and and Casilla. That's pretty magical and it's much more uplifting and hopeful. And we had to do cool things like likening. Some Elena talk about the present. Leukemia when I think of leukemia I think of them mainly as affecting children is that the case or is that kind of an equal opportunity cancer. That's one of the most interesting things about blood cancers is that they are the blood cancers across the border equal opportunity. It doesn't affect one age group more than another one gender one race everybody's sort of at risk. There's also no screening for it so you just have no idea he can be totally normal one day. And then the next they have this diagnosis just bombard your way in your life. A lot of the patients that are equipped that's the case. And Dave and woke up here like they had the flu one day. Go to the doctor after feeling this nagging flu you know tired and strange flu like symptoms and eventually doctors ran a blood testified that things are not right. But it's not something that is usually so glaring that you know right away of my gosh I have cancer. It's sort of a slower on and really anybody is susceptible. Do we know any of the causes where does that come from. That's a great question. And different blood cancers spares. A lot of speculation about wary of what the causes might be for different blood cancers because there's a whole variety. I'm within that category of leukemia within a category of lymphoma. There's a lot of different. Very particular specific blood cancer diagnoses. And so each of them there are different. Environmental factors that might contribute to a diagnosis by. Nobody really knows per share and like a sad day it's it's not necessarily. Hereditary all of them it's not there's no way to screen for it so. And it is it's. It's scary that it is an even playing field but it also shows the great need for it for the researching for the treatment. Every three minutes somebody is diagnosed with what cancer. That's remarkable that's a good that's a big population it's overwhelming to think that. It's that often that somebody is hearing the words you have cancer. And then bill blood system and the lymph system in your body that's what that's like a moving target in his how to do how to we narrow down the treatments. Who then that's a great question too so and we got some really brilliant minds working on blood cancer research some of the best in the world. And there leukemia lymphoma society is very intentional about where we in past and what doctors researchers. Institutions replacing. Our time energy and money to make sure that the vast. That that are Reese is resource is our invested in the best possible. Places to make sure that. Treatments are being discovered. And then applied to patients who really need and there are certain. Really mind boggling things happening. And our president and CEO of the leukemia lymphoma society talks about one particular treatment as star war is Madison. In which is. Tons in my eyes got wide out but that's a pretty cool it's really cool and it's just. Mind boggling to think that these brilliant minds these doctors and researchers. Are doing things like taking HIV virus. And manipulating and in adapting and putting it back into the body of bed and then it's attacking the cancer cells. It feels totally counter intuitive but the users that's something that LS this funding. And the work that's being done to fight cancer find a cure for cancer. That is remarkable and many black hole is a little bit ago that oh over the last few months 25 different. Treatments have been approved by the FDA in twenty of them came from fellow asks what is on the horizon what do you see coming. Much smarter people than meet the U uncertain until it is strictly. But honestly it blows my mind every day to hear about. It feels like every day there's something new that's coming on the pay a fine different. And research opportunities in advancements that are just mind blowing game changing. I'm for all sorts of different diseases. And I truly in my heart of hearts I believe facts. There's going to be a year. And in my lifetime in our lifetimes. And I honestly believe that win there is they cheered. It's going to be because of tell us because of what I was not earlier that blood is the only thing in the body that we knew remove it doesn't change composition. So we'll while we're trying to find it sheared blood is the place to find it. And an actually ability your lymphoma society we just sort of re branded and aren't you taillight is beating cancer is in our blood. Obviously that's double its intended to have a dual impact statement there and in the sense that yes beating cancer they cure for cancers than our blood system but also I'll ask truly is the organization. And I believe that was on my heart worthy organization to find it here Austin. Consultant I know linger there must now and I think that's one of the hardest reality is is that everybody knows somebody that's been impacted by cancer. And working for the leukemia lymphoma society is an honor and it's a privilege and I hear people's stories every day. People that we're totally normal one day and then the next day were diagnosed people that. In other family was totally healthy and living on a wonderful life and then mom I had a father at a kid grandparents somebody. Was diagnosed and it changes everything up and and too many people know somebody. Everybody has a connection to cancer and it just doesn't feel fair or okay and so we're doing everything we can change stacking. It's great. So when somebody is newly diagnosed I'm assuming they can turn to Ewing gets some pretty good support absolutely can they get from you. Yes we are the largest out of provider of free resources. On far any sort of cancer patient so more than just like cancer we've got all sorts of information and support services. I'm blood cancers in particular we have patients supports services like co pay assistance and travel reimbursement. Actual dollars in pockets of patients and because we know that that's a challenge it's really really difficult to. So we have those resources at it in addition to nurse hotlines care providers. And support systems not just for the patient for the whole family and all the caretaker is we know that everybody's impacted by it. Yeah. Somebody newly diagnosed at a spew the scariest thing in the world anything new if goalie are you terrified but you've probably feel like you're completely alone. Honestly yet and are on our cargo watchers Kenneth Thompson she's from any NHR this year and she says about she says cancer is a Stanley disease. And everybody. In that person's world is impact and and it's and it's terrify and and so we wanna be there for every every person. That's in that situation we wanna be able to be there for them. You look at what they were couldn't get more information. It's simple let's study WW dot LO less stuff pork. Municipal that is until that you don't have to try to spell leukemia now yeah there's got to. Thank you for that yes absolutely so you do we can hinted that a little really Gobi assuming coming up called late tonight tell me about the. Late tonight is amazing and first and I time. It's an evening walk and it's held it and every fall this year it's October 27 Saturday October 27 in the parlance southwest area. These walks are held across the nation and really it's a celebration. As a celebration of hope. And survivorship and this whole community rallying around those that have been impacted by cancer. Like I said everybody has spent in one way or another and that's the sad truth. And that this is really meant to be a celebration and bringing our baby together. And various food and music and also it's a finder's fireworks we walk from unseat. Across the silicon crossing in around male HS UN and backs it and to being about a mile and a half long walk. But evening itself we have a really powerful program. That honor is all of the survivors and all of those that have been touched by cancer. That's awesome. That's a great part of downed walking through the Telecom bridges too soon cool have you seen a lit up that night it's just young beautiful I'm the host a late tonight. Took a cut yet and everybody who comes to the locker room. Registers for the lock. And receives an illuminate Atlantic. And it's the most powerful thing to see everybody carrying their eliminated lanterns. Across the Telecom. And as it gets start and each of the lanterns the colors mean something and everybody gets that people Internet means and that that. Fits that so we have lightly entrance for survivors. Bradley and transfer supporters. And then coldly entrance for those that are walking in on her memory of somebody. But a beautiful visual. It is so beautiful nights where your fund raising goals for this or we are hoping to raise 850000. Dollars. While I know most of the amount of money would be out of but ER I honestly think we can do it at last year's likening it became the biggest Walken or again. And we raised over 700000 dollars last year. And and that is an outpouring of love and support from the community. Through corporate teams through France and the only teams through some amazing retail partners. And then some awesome corporate sponsors as well. You talked earlier corporate walked her to leave until we with a once again our carpet watcher is Kenneth Thompson sisters any NHR. And she has been personally impacted chancellor lost her dad to blood cancer. And she has turned that into a way. I have for her to honor him and show her leadership in this community. And I'm actually really proud of Hershey. With the help of her team she just hosted a fundraising concert. It's sort of third party events injuries over 30000 dollars while I know all. There isn't some amazement she is yeah we're pretty proud to have ten involved in and she's done an amazing job of engaging other corporate leaders. And sponsors and teams in the community. And just getting more people on board the more people I know about late tonight and I'll Alaska more patients were able to have reached and everybody wins in that situation now. Somebody wants to get involved in late tonight totally do. It's also really simple compliment any data late the night dot org. So if you go to the late tonight website able to find on any of the late at night throughout the nation but specifically the Portland selfless Washington lock. It'll direct you to the Portland rocket there is information about volunteering. But registering for the Locke about anything that you couldn't. That you'd like to do with the lock we can help. The dilemma people do it in teams are moved and or individually your all the above most people do it and he used but everybody's welcome you can have a team that's to lure a team of a hundred. And we have. Sort of two different subgroups corporate teens and and friends and family T and so corporate teams are. Businesses and and others supporters in that area. That are engaging ad at a business level so in the office. Or in schools. And pulling together and and having a common goal of a fundraising cool. Or no fundraising and friends and Hanley teens usually rally around patient. And foreign friends and families and teens coming together to come to the walk and and sometimes teens think she shared send. Make a big celebration not a bet but really everybody's welcome and I think the biggest thing remembered elect and I it is that everybody is invited it's a family friendly of the family friendly events. It's freed a registered so we want everybody to come and be part of this magically evenings it truly is it's amazing. And a lot of people like to walk the third the dogs are dogs allowed to walk. That's a great question. We are in the gravel lot Rick behind on easy for the main part of the ceremony and so we actually can't hunt don's within that locks could that. Makes sense Clinton infinite rate of one of underdogs. Help her I mean idea I was taught doctor I guess. So well we knew we nude and participate in late tonight he did something like a cool teaser and make them yes everybody gets eliminated lantern and that's Anthony could take home and keeping thief Everett's. And battery power NC it will keep turning on and off. Trip. Are forever until battery stack. Yeah. But and in addition to that anybody who becomes a champion trick here and raises a hundred dollars fundraisers a hundred dollars. Receives a free T Sherri and a mile to lock. That's nice is really nice inning you think about going out in Portland and having a night out. It can you could fairly expensive and this is a free night for you but if you're feeling inspired to fund raise you know asking a few people offered donations. And then raising a hundred dollars it happens quite quickly and then you get a free teachers to show off your prize in food to enjoy and like I said there's a DJ news music news. All sorts of different you know that we of the glam station in the kids' zone and all sorts of things that. Entertain the whole family. Yes amount fundraising Tinto should do what are good ways for people to raise money. The biggest way to raise money isn't just let people know that you're doing that's. But none of the worlds and let people know that you are irons lady in the night this year bringing light the darkness of cancer. And everybody who registers for a walk there are fundraising pages automatically created for them so that's how the URL. And sharing Mac web page via. Email or social media are too great ways there's also does classic and very effective letter campaign. I'm always a big since the fan a snail mail. Its name to get funding in the mail and and by putting out of the world and letting your friends and family and coworkers and everybody that loves you know that you're doing this and and raising money to help trying to cure for cancer and help bring light of the darkness of cancer. It's always overwhelming in the best way to see how people are willing to support. And so. I think the first in the biggest part of it is just asking putting it out into the world. Thank you don't be surprised by how many people who would come out and support you all are doesn't understand your family of course is gonna be there but you. Put it under social media pages and also Googlers coming out of the woodwork I know I'm Brent buy into this is also. Great because everybody has a connection. In some way or another so light the night besides the walking them on the in the beautiful. Stereo that you can across the total cross and what else can be happening there welcome people expect. LA in the and we do a lot to make it mission centered. And we have two of my favorite parts of the lock the first one is the remembrance two billion and it's this golden pavilion. Dome and you walk inside of it and it's a beautiful peaceful place for you to take a moment and remember if you've got somebody to cancer. Menu can pinup photos and a little notes and reason why today's bulletin boards amongst and and it's a really. It's just a beautiful way to be able to honor somebody in your life. And so that is one of my favorite components and it's the lake is at its its in this pavilion and it feels like a little bubble a place you can go and have a moment of silence solitude and and peace and quiet. When outside of it it's that you celebration and then DJ is playing in kids they're ending around and it's. So find raid outside of this pavilion but we feel like it's really important to have that space. To honor somebody now. So that's wanna make cheaper components. And then my second favorite which is everybody's favorite. Is a really powerful moment that we have in the short program so before the locks starts we have a really short program. And during that we bring all of the survivors with their weight lanterns to the center of the audience. And there in the survivors circles that forms a circle all of our survivors are there. And as they turn on their lightly and turns we light a light beam of light into the sky the Cotter beam of hope. And everybody likes their lantern around and saw all of these survivors in the center. A live audience feel all the love and support of those red and gold standard setters or by surrounding them. And it is just truly magical. These usually not a dry I mean. Because it is so incredible to see others community comes out and shows up effort for everybody. That support is so important to survivors and for people who are helping. People who have been diagnosed truly yes. That's the only credible again another beautiful visual in June but also it's convincing you read the U wanna county yeah brilliant. It's only just a really magical night and it gap where you can be on set and Saturday October 27 probably at the. Told him crossing LA tonight yeah yeah. As you're gonna be here right Diaz Elena and take to prepare for all of the stuff that's pro is holding a big big to do. It is yes I have a daughter working on an all year long and so and work with our leasing corporate sponsors and teens and friends and the only teams and retail partners all year long. So sort of maximize the reach and the impact that were able to have your late at night. Whether it's being up at the hospitals and doing a late tonight walk with the patients that aren't able to make it. Or working with new businesses teams to sell paper icons and raise money through their retail partnerships. Or at corporate sponsors I do all sorts of things to helping gauge this community. And it's it's not a it's not a tough sell. Because it is such an amazing. And mission and it's something that everybody can give the height and income that we can all agree that. It's time to find a cure for cancer. For sure so somebody is being impacted by cancer whether they've been diagnosed a litter of a family member a loved one that's going through cancer right now can they get lots of information that late tonight. About how to help them out absolutely it's it's a scary. Trail. It is it is yes we have information. And and staff and we're happy to help she shared at like at night but even more than that. I think that one of the most part of powerful pieces that year cables that connect with so many others survivors and people going through treatment. I'm caregivers and just people who have a similar heart for the same same thing that you're going through. Patents so again to seeing how this community comes together and shows up is amazing. You know inspiring to receive people that have survived and they don't really oversized yak and all ages to I mean it's. It's just a powerful to see those four year old little girl as it is to see the 95 year old man and it just all of these people are such warriors and are so inspirational. What keeps you going to a missile and those people. Mean you look at those faces and every single one of them has a story. And on each story is unique and it's terrifying. And powerful and inspiring and hopeful all in all in one. And the fact that I get to show up and and be part of this community everyday is. It's something that's humbling an amazing. Now let's bring great good trio. Nice reporting jump in as I guess so last minute or so we have your game nobody tells a need to know about late tonight. Yes so late tonight and you go to lake and I got Ford and you're able to sign the Portland block. Register for free it starts at 5 PM on Saturday October 27. And the lock it's awful start around 63645. And we cross the Chillicothe and cross seating around Bailey says UN backed and then we top us tonight with fireworks and they told him about it on the fourth of July now. Could have been a doesn't come out enjoy this and in rain could could mean part of the evening and celebrate with us. And honestly bring everybody bring your friends and family and kids and grandparents. Everybody is welcome. The lock itself is about a mile and a half long but if you have the patience. Or grandparent or somebody who's just not able to do the mile and a half block we have. Out of viewing area. We can sit and watch the beautiful. String of lanterns people walking with their eliminated lanterns over the bridge they'll be viewing area. So we really just want everybody to be able to come out and enjoy. We never drone fly over skits and aerial photo we show a guy in the. I'm an artist and we're in a perfect weather for it so about. Good equipment and your cost of that student who's who's been great thanks for older information that I think you so much were so grateful for years as a part in. I'm really looking forward to just a magical evening. Entirely new and Williams with the leukemia and lymphoma society thinks he can thank you open. Mantras go fees and Entercom radio Portland public affairs program. I'm Gary block some if you're involved with a non profit for the public affairs organization or if you have an idea for an upcoming show I'd like to hear from you. Visit microscope PDX dot com and submit your ideas you can also go to the station's website and some richer information there. Thanks for listening to metros go and enjoy the rest of your weekend.