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JDRF Walk 9.7.14

Sep 4, 2014|

An interview with Greg Smith, walk ambassador for JDRF, about Type-1 diabetes and the JDRF Walk To Cure Diabetes on September 28.

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Automatically Generated Transcript (may not be 100% accurate)

You're listening to microscope a series of interviews of people of interest to northwest Oregon and southwest Washington money into your blocks of type one diabetes is an autoimmune disease to which a person's pancreas stops producing insulin which is a hormone that enables people to get energy from food. There as many as three million Americans have type one diabetes. Coming up on Sunday September 28 is the JD RF walk to cure diabetes and today and -- the scope we're going to be talking with Greg Smith he's the GDR have to walk ambassador. Hi Greg I think scared so JV RF let's start out with the explained to everybody what GD RF -- Well dearest answered Juvenile Diabetes Research Foundation. Started out. As Juvenile Diabetes Research Foundation by its effects actually. More than just juveniles people are often diagnosed as juvenile split. Always into their forties. I'm so a little bit of a misnomer calm and 85% of people with type one diabetes. Are adults so. It's. Start out that way back in 1970 -- we kept. The name intact. Subsidiary -- has just kind of an updated. Pavement makes it makes it more. Relevant to what's happening now because more adults are being diagnosed with type one diabetes exactly and it's recognizable and repeal. So looks maybe explain to -- the difference between him and seems like in the news type two is is this disease has talked about most type one and type two are two different. Well they're both diabetes but there. Quite different. Can explain to -- what the differences yes com. For the longest time we had JD RS from juvenile diabetes and then we had type two and time Warren type one is the reference towards the juvenile diabetes but. Just because of when someone's diagnosis it's actually more of of the disease affects that person so. What type one your body doesn't make any insulin. Beta cells that are shut down. And the patriots it's no longer is able to deliver any insulin -- in the body. So. You have to take insulin in order to survive it's kind of our life support. Now with type two and oftentimes people are able to control there. Diabetes with diet and exercise or sometimes supplement they don't make enough insulin but they still have insulin production and their body. It's -- game so you are type one diabetic yes -- -- -- yes with a look what is life like for type one diabetic. It's constantly changing. We. We can't take a break there's there's no days off from this disease and it's it's constant with someone else it's down for a meal. They look at the mile seminars looks great. If that's me on -- -- man that's a lot curbs. You know we really start counting Karzai and with the -- counter carbohydrates figure out the ratio of insulin for a cover hydrates that you need. Calculate how much exercise of I had recently when a mile and a half later origins minority have on board. It's consulate a chemistry -- going on in my head. -- so that's it's it's costly in motion and you never know exactly how certain cover hundreds are going to affect you and ruby child's -- pizza. Got a lot of different era calculations on what that trust is going to be like. Long acting curbs are short bursts of cars in a -- vs pizza is a lot different combine them and you're playing with fire. And in sort of fat also accept it throws everything off to you have to calculate in the fact is -- -- melon and exactly it's it is like a big math equation going on constantly yes -- hours look for. -- other type one diabetics and we have you know great math contests. It's consistent or to say hit movie compare meals look at how many -- do you think this is you know about this that's always always an opportunity to to have a little fun. And kind of relative you're telling me a story a little bit ago about. How we didn't experiment on yourself keep the same thing at the same time into the same exact thing for two weeks. In your blood sugars were still. Still movie still buried yeah -- even though I held as many things constant as possible. Tom you know sleep Frenchman it's bad time the same time wake of the same time -- amount of exercise the same time. Number still varied and I'm so. Now you switch up the variables and yet -- you're constantly. Just trying to stay in front of the numbers and make sure Pletcher is good -- -- to carry your body. And you check your blitzer -- pricking your finger. Several multiple times and had multiple times today and -- every time you're going to eat you know -- wake up to Tennessee restarted the day before you Tibetan issue out you know go to bed with. Potential for alone Pletcher overnight. Oftentimes people forgiveness -- of a ceemea. You know you just don't have those. Those things happening so you costly checking your sugar mixture that you know -- -- starting and topic curbs and making adjustments to bring those numbers back him on. What are the risks of being too high or too low. So the starting to -- when there's not enough sugar in your body and he can't function on that sugar goes. All through your system and helps you function helps your muscles move helps your brain function. Now when you get too low -- future gets too low he had too much insulin -- too much activity confident out of food the consumed. Normal people get this to unity that little bit past lunchtime we haven't had -- T circular little shaky little jittery. For diabetics it's multiplied -- compound them with type one we have yet cheeky yet. Sweats -- it. And I tricky and my wife always knows I'm a little melody is like. You check your sugar lately and I'm Susan wise and being a jerk and she said just a little bigger here and let your definitely probably something to -- at that point. And if you go too low on your body will shut down. There -- some risk of going to -- on the low side as well. With publisher hyper -- ceemea. The risks are. That you have long term complications. It's not a very immediate impact for a long prefer the high blood -- -- your -- -- it takes a toll on your body it's basically just breaking things down slowly and making long term impacts. People get very scared about. You know effects of diabetes and they have all these stories and say I can lose your -- you're gonna you know have amputations you're gonna. And on your -- have heart attacks you know it whatever the blood vessels and a weakening. Hear your point of life is going to be horrible. But the impacts of that aren't immediate we don't see those for a long time without with a lot of people not you know take care of themselves for a long period of time. So the symptoms on that though people oftentimes they'll start team very thirsty. Their muscles get tight on their frequent urination sudden weight loss to put it drowsy. There's a free order on people's breath. Those those are the big signs that your what's your time. That's usually they used start to recognize and diagnose people. When I was diagnosed. I had actually been fighting it for awhile and sharing the symptoms of prime. -- when I was fifteen and very active. Her healthy fit and mystery to -- water like a gallon of water before launch and can drill was going on he's in the restaurant a whole lot sat in the front row of the classroom and my vision was kind of blurry can you read that that. You know white board. And was finally out playing baseball and had to step down and just giant bottled water at 64 ounces my -- like while -- -- a thirsty. Gas went up there and I was warming up. Preparing for pitching and before we start thinking don't back over its marking unit -- -- standing in -- messenger. -- -- just had a huge drink I don't so thirsty. And my mom has them are in for most for years now. I -- is not allowed to guess what -- we have anymore because she says she may have diabetes. And well she was right unfortunately. Some. When -- thin guy anyway so. -- for the little little little weight loss it was probably pretty noticeable and it caused tall drink of water my entire life and I -- it even more sometimes. So JD RF locally and it's a national organization but locally you. And nationally were -- trying to raise money to find a cure and to continue with treatment therapies to know some of the research is happening locally with junior. Yes. Actually here -- -- we've we've done a great job just since 2001 we've raised four point eight million dollars. Is looking for opportunities to put that research to work a lot of that this can't be right here in our local communities we're working on encapsulation. Which is another way of delivering. On insulin throughout the body and while also working on artificial pancreas -- which is. You know -- more steps towards a cure. We're trying to create improvements on managing diabetes as -- find a way to stop. Now we wanted to make type one type none it's. You know if we do we're working really hard even locally ounces. Find cures and find improvements on mansion on diabetes. Hillary's is happening went to the which issue yes threat to help. And it said. It's great it's not like your money's going to some place. You know on the East Coast and you know oversee the progress were right here in our own backyard and I was one of the best research facilities in the country and coaches. And one of the largest well I think it is the largest fund raiser for the local chapter of JD Arafat is the walk to cure diabetes which is -- -- the corner yes I'm one of our walk to cure diabetes on Sunday September 28 at oaks amusement park. -- start -- that -- 9 AM with breakfast and you know welcome everybody out there and the walk will start at 11 o'clock. It's a great event we have thousands of cameras out there. And anybody that raises twenty dollars. For a cure for diabetes Powell. Earn a walk for assuming a ride bracelet -- come out the kids in -- -- Colonel -- bracelets and and had a great day out there spore an incredible costs raising money for. A cure. And also get to have fun with the community. Twenty boxes these theories Tony looks crazy to race. -- if you aren't even -- up that ante up a little bit limit every hundred dollars he raised you qualify for a Judy RF teacher. And probably can show people you've been. Raising money and sport great cuts if somebody wants to get involved in more kindly do that well -- couple ways you can. Donate or sign up to volunteer. Or register at a walk dot JE RS dot org. Com or you can even call ladies kinda hard local JE RS office 503643. 1995. -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- -- Can also find videos and information about. What we're doing with the research program where -- money going and in CA actually an action and I as. The great part about it people's ballistic nor raising money for something but. You know seat going to work on US the website you can actually see that. Progress from the research. There's also great YouTube channel for JD RF. I'm so -- -- up there to -- -- dungy RS dot org website or even go to YouTube and pull TG ERS on channel. Some incredible videos I'm sharing the progress -- making -- research and when you come to the Waukegan meet. So many people and and families and children and adults and that are being impacted by this disease it's it's. It's an amazing thing to meet all of these people all upon. Stick it out and hear their stories around that no one's come to type one diabetes exactly the same way. It's like a lot of different diseases and you know the families have gone through. So many different trials. You directed education that they had to learn about diabetes. But no matter what stage had been diagnosed there's infants. When -- two year old three year olds that are had to take injections and shots and those are the kids administering those is the parents. It's big learning curve and there's a lot of need for support and I'm just to community just know there's other people. Like you out there do you want this and to have the community come out even people that aren't affected by diabetes directly. And I'm gonna say yet because it's growing all the time. It's -- say it's incredible to surround each other and community and and be there -- support. You were saying earlier that eighty people a day staff are being diagnosed just a radiant day. 151000. Children and 151000 adults. Approximately per year are diagnosed with type one diabetes in the US. And at this point there's absolutely nothing you can do to prevent that happening to you nothing you can do to prevent it and nothing you can do to cure -- weird place that. This is a disease that people with -- and there is no cure. And people say oh you have insulin it can take care of innocent look. That's like living on life support the -- Tom I can't go without it I don't know days like say hey I'm just going to canceled today. And so you know we. Every dollar makes a big impact and -- -- said -- -- GDR freeze a lot of money already suggest they do. Some of the tune of you know one point. Nine billion dollars that they -- raised and I said that's a lot of money. But every year in the US it accounts for fourteen point nine billion dollars of our health care spending. So on in relative terms we barely scratched the surface now. That definitely a lot more work to be done absolutely. You can help out by getting involved in the market to Europe for a walk -- era -- dot org. Yes and come out come Sunday September 28. -- -- amusement park. -- it's a great today a lot of fun. Power and have great weather this year I've or soccer tournament a perfect. The only walk ambassador for -- if what does that mean I'm one of them yes I am the first so adult walk ambassador. And I have three other ambassadors now with me as well this year but. We're just additional active voices for the walk in four GDR. I'm 32. As a walk ambassador. We also have demery who's sixteen we have Bryce is ten and we have -- Eight -- -- Great commercial out there -- if you go -- FaceBook page for. JD RS and -- southwest Washington we have a little commercial out there at all. Also be airing on Ted -- awareness but we try to authorized -- music park for you and they're working round now. If you've -- them already we did just that comes -- an -- special -- So maybe we can talk a little bit about DB Europe's outreach services missiles but those actually. Jarrett does a lot. For. Organ and interstate organ as well southwest Washington. This chapter to us organ -- South Boston chapter. I would call weapons towards battleground and -- area. But we do on a free our group for those affected by type one diabetes than we do -- copy groups across the state. So I can gather and talk about you know successes in trials in the -- additional support. Com and most importantly we do about a whole program. For every person is diagnosed with type one diabetes Jane -- provides a backpack full of information tools and resources. For their new life managing type one diabetes. Around there's also tool kits that are available through JD RS. -- four of the other challenges for people that are not destroyed newly diagnosed there's I don't packages and things like tactic. You -- different stages and you know I've just managed just diabetes. You know one day and say I got it. It changes all the time so someone -- you know a child so as a teenager someone is in college someone that's an adult. There's always different stages and there's a lot of resources NG or if I'm available. When your first diagnosed can be -- First off very scary and then you feel very alone and very confused -- don't know what you're going to do you don't know what your life will be everybody's heard. Terrible stories of what it's like to live as a diabetic excellent and so you. One great thing about. Does the networking and through JE RS -- apps -- critical to him in my success with the disease I had. I know that when you feel alone and -- you feel like an island with this disease you're not. But doesn't just because -- and you knowing your mind you're not it doesn't mean you don't feel that Clinton. You know wanted to admit when you've had a bad day we are not doing well when you're struggling. But there's a community out there that help support that -- have got in touch with a concrete page that folks on -- -- that medics that are. Actively living and working out and you know being active through FaceBook you know social media's got some great tools out there. But I think nothing truly compares to that in person companionship and be known to have that faced another real person it's dealing with the same disease. The different feature a different capacity. Mom I love that about the walk we got there my family. On my wife can talk to other you know wives of its type once she's like yeah when they have low blood sugar she had paraphernalia we got some more stories. And then my kids are so excited about it find all the sun's going to be five in October and he -- or annual walk for daddy's diabetes. The content and you know it's in there was wanna be concerned about daddy's medicine and they. They know life around that disease and to have them -- of fellowship and being commune with other people. That are deal with that same thing it's it's incredible -- than the network of people is. It's fantastic simple clicks to did you arrest -- thanks JE RS and putting people in the right spots we have room. Beyond just the community in the network we also had an incredible advocacy program. Combat exe program through junior RS is changing the landscape of how we have legislation in this country -- -- The group together from around the country and push forward on laws that impact funding for diabetes and research that -- diabetes. One of the -- resources available. To us is that advocacy and to join in and be part of that. Group. I used to go to advocacy -- JRS dot org and sign up to be an advocate and each year. These volunteers zero -- exe program you know. Lobby and work towards funding for a special diabetes program. Which Carter's a 150 million dollars for research to the national institute of health. That's a big figure prominently in making impacts every day. -- Other other volunteer opportunities that people can get involved with locally the -- and intentional walk would accept any kind of volunteer than if you volunteer for the walk they're gonna take it yes that's wealthier and other other times. You know we don't we don't only do blocks we actually do writes from now -- but we do watch the cure and we have a gala with them every year may that we love to have people come out to support. I'm additional research says it's a great night. But we're constantly. Doing outreach and -- and doing little events and some people have done you know sponsorship for. Came together turned to raise money for their specific team. But also is to raise awareness. One the places where. We're getting a lot of traction from some different corporate sponsors and we have. Other ways to sport to walk all over town with. The three might strike ends and they're selling GDR off walk sneakers. Little piece of paper that just is your pledge for sponsorship -- you -- -- -- for a dollar five dollar ten dollars hundred dollars we will stop you. And you also. Built for sneakers and marshalls stores. So. If you have a sweet to see stuff like basket runs in the west Linn or Gladstone. And by -- -- there. You know there's a few more days of sunshine left so if you can match that up with some ice -- might say it's a good deal definitely doesn't agree with -- You've been raising a lot of money yourself for the walk. Yes Arnold's and Obama over the last few years or last five years to raise almost 20000 are -- -- -- with our team for the -- diabetes. My team is great chance to tear. Stand a six foot four -- caught my -- that come -- plus six foot so nice. What were noticeable a lot of civil war that we welcome the -- we look like giants especially when there's a lot of you know 567 year olds that are out there with type one diabetes. They literally look up to us and so there's there's a big responsibility there but. Now we love getting out there and raising awareness. One of the big things that we provide with a walk is. Something that people continually look at it for diabetes there's people with type one diabetes. All shapes and sizes. And they're out there are increasing awareness and money for a cure. So let's remind everybody one more time about the walk where women Helen W roadster and yet are so speaking out to the website had to walk -- ERS dot org compounds to register as well as to donate. And they'll walk will happen on Sunday September 28 that -- amusement park starting at 9 AM we'll have breakfast. And the -- officially kicks off on eleven. It's really agreed that now it's it's. Incredible opportunities. To come out and to be part of today. You're diagnosed in you're fifteen is that correct yes what did you got to go to your teenage years your college years in high school years and now married years what what's what's that been like for you each stage has been a different process and and I look back and say well how to get through that but it did. So I I won't be encouragement to you know parents that are out there with. Young kids that are recently diagnosed and they look and say why are they don't have a lot of hope this is doing much. -- have constant burden of this disease who said but do that burden -- the opportunity to do just fine. I look at myself as of a walking example of living with this diabetes and I look at type one diabetes is Sam a person living with diabetes and not diabetic I hate labels. And so if you sell your diabetic can say. Well that just treats stigma on somebody's head that's it's they have a paradigm that. Says that's what a diabetic as you Kenny sugar on me you know you're gonna lose your feet you know now this is not. It's not accurate -- person living with diabetes successfully. In professional you know. The work of a lot of people in my profession that you know rely on me to be there for and they understand. That I have a lot of responsibility in Mac and my kids rely on me and my wife relies on me and I rely on me you know this diabetes as a marriage itself south. I'm consulate trying to do my own advocate and make people aware of you know how to take care of themselves and you know what to look out for fighting cranky. So I think it's that indeed -- is very lucky to have you and see what can master can you are walking example of of the right way to manage the disease thank you -- I'm not I'm very honored and very blessed as. More -- ERS and -- -- my other ambassadors balances to raise more awareness and to bring people ought to lock on Margolis years. How are completely. Funded block we have a big goal of nearly 300000 dollars to raise our walk this year. And every dollar helps people I -- I can't make a big donation that's okay. Every dollar adds up and the -- ourselves we don't make a big impact but as a community effort and has a huge group of everybody put a dollar and now we get there are no time at all. And to walk dodging the RF dot org is a place to be the walk is September 28 that oaks park Greg Smith Jane -- walk -- master thinks will be limited scope to her so what's your country. Microscopes and Entercom communications public affairs program. My name's Gary and if you have a nonprofit or public affairs organization that you'd like let others know about you can email me at microscope @entercom.com. Remember Fincher can't start -- Or you can go directly to the station's website click on the community link in some -- information there. Also we like you this program again you can visit our podcast page at microscope PDX dot com. Thanks for listening to microscope and enjoy your weekend.